Privacy Policy for Sojorne

Effective July 27, 2024

Thank you for using Sojorne. Sojorne is a platform that supports caregivers of children or adults with special needs, disabilities or chronic health conditions to live better lives. We partner with families to address their care, coordination and community needs. Sojorne provides services through its mobile application, web application and through webinars and small groups hosted through its website.

**1. Information Collected**

1.1. **Parent or Primary Caregiver Information:**

- We collect the following information from parents:

  - Name

  - Email address

  - Contact information

  - Health-related information, if voluntarily provided

  - Any other information necessary for the app's functionality

1.2. **Children's Information:**

- For children using the app, we collect the following information:

  - Name

  - Date of birth

  - Health-related information, if provided by the parent

  - Any Education-related information

  - Any information necessary for the functioning of the app and its services

**2. Definition of a Child**

- In the context of this Privacy Policy, a child refers to an individual under the age defined by applicable laws and regulations. In the US, this is typically individuals under the age of 13 (in compliance with the Children's Online Privacy Protection Act - COPPA) or under the age of 16 for residents of the European Economic Area (EEA) and United Kingdom (UK) in compliance with the General Data Protection Regulation (GDPR).

2.1. **App Functionality:**

- The information collected is used to provide the functionality of the app and its Services. This includes generating personalized care plans and templates based on the information provided by the parent and facilitating communication between Primary Caregivers and healthcare providers.

2.2. **Improvement of Services:**

- We may use anonymized and aggregated data for analytical purposes to improve the functionality, performance, and content of the app and Services.

2.3. **Communication:**

- We may use the provided contact information to send important updates, service-related announcements, or other communications deemed necessary for the proper functioning of the app.

2.4. **Consent-Based Sharing:**

- Primary Caregivers have the option to share certain information, such as care plans and templates, with designated parties. Sharing is entirely at the discretion of the parent or adult and can be managed within the app.

**3. Data Sharing and Disclosure**

3.1. **Internal Sharing:**

- The information collected is accessible to our authorized personnel, including developers, support staff, and other relevant team members. Access is limited to those who require it to perform their duties.

3.2. **Third-Party Service Providers:**

- We may engage with third-party service providers to assist with app-related activities, such as hosting, data analysis, and customer support. These providers are bound by confidentiality obligations and are not allowed to use the data for any other purposes.

3.3. **Legal Compliance:**

- We may disclose information if required by law, legal process, or to protect our rights, privacy, safety, or property, or that of our users.

**4. Data Security**

- We take data security seriously and implement reasonable measures to safeguard the information collected from unauthorized access, disclosure, or destruction.

**5. Data Retention**

- We retain the collected information for as long as necessary to provide the app's functionality and Services or as required by law.

**6. Primary Caregiver Consent**

- We require parental consent for the collection and use of children's information. By using the app and providing information about children, parents affirm that they are legally authorized to provide.

**7 **Employers (Sponsors), Health Insurance Companies, and Third Parties:**

- We do not share any personal health information of parents or children with employers (sponsors), health insurance companies, or third parties without explicit consent from the primary caregiver. Any data shared is anonymized and aggregated to protect individual privacy.

**8. Data Security**

- We take data security seriously and implement reasonable measures to safeguard the information collected from unauthorized access, disclosure, or destruction.

**9. Data Retention**

- We retain the collected information for as long as necessary to provide the app's functionality and services or as required by law.

**10. Jurisdiction in the US**

- This app and its services are intended for use by individuals within the United States. If you are accessing the app from outside the US, you do so at your own risk and are responsible for compliance with local laws.

**11. Amendments**

- We may update this Privacy Policy from time to time to reflect changes in our practices. Users will be informed of significant changes through the app or via email, and their continued use of the app will be deemed as acceptance of the updated Privacy Policy.

**12. Contact Us**

- If you have any questions, concerns, or requests related to your information or this Privacy Policy, please contact us at privacy@sojorne.com.

By using our health tech app, you acknowledge that you have read and understood this Privacy Policy and agree to its terms and practices.